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Cyclophosphamide (don't ask what no drug this is) Options
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jenni_b
#1 Posted : Monday, January 02, 2012 8:53:15 PM Quote
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Joined: 12/3/2009
Posts: 2,237
Location: nr Southampton
I'm going to have this thursday
Not able to move due to extremely active ra
So have no choice
Ambulance into hosp

When I mentioned to nurses on ward c7 that do these meds for other cases like me/ others who are on biologics etc
They all wince
Avoid eye contact
Say
Rather you than me Jen!

Then leave saying 'it might work of course'

Doesnt leave me with much hope!
Any experience out there?

Met one lady who couldn't tolerate it at all but is on rtx ok she has lupus.

Jenni
how to be a velvet bulldoser
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dorat
#2 Posted : Monday, January 02, 2012 9:17:15 PM Quote
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Posts: 3,157
Location: Huddersfield
Wishing you all the luck in the world with this drug Jenni.
Who knows, it may be the one that helps you?
Do they do the same with this as they do with mtx......give a much smaller dose for RA than they would give for cancer treatment?

Doreen xx
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jenni_b
#3 Posted : Monday, January 02, 2012 9:58:21 PM Quote
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Location: nr Southampton
Richard and I have just laughed out loud

Such dignity this ra flare affords me I need his assistance in the loo

Sat there having me wee
I explain on the bmc website 9 out of ten have

WOOLOUSE!!!!

(I saw one doing it's winter inspection of our shower!)
how to be a velvet bulldoser
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jenni_b
#4 Posted : Monday, January 02, 2012 10:00:08 PM Quote
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9 out of 10 have side effects is what I meant
how to be a velvet bulldoser
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Sara-R
#5 Posted : Tuesday, January 03, 2012 6:00:59 PM Quote
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Location: Cornwall
Wishing you all the luck in the world Jenni, no idea what this is, still working on a need to know basis being a relative newbie to this game. Will be thinking of you
Sara
x
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jenni_b
#6 Posted : Friday, January 06, 2012 9:20:58 PM Quote
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Posts: 2,237
Location: nr Southampton
Dose 1 - went in fine!
No allergy
No sickness

I'm so used to tingling Tongue and swelling etc but none of that

Slept lots and feel groggy

But managable so far
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